International AIDS Candlelight Memorial (2018)

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[00:00:00] This program is brought to you by pride in zero.com. [00:00:58] My, [00:01:37] my [00:01:49] MA, [00:01:57] market [00:02:14] Thank you. [00:02:19] Just some words to start with. As surely as we belong to the universe we belong together. We join here to transcend the ice lead itself, to reconnect to know ourselves to be at home, here on Earth, under the stars linked with each other. [00:02:41] The International AIDS candlelight memorial is much more than just a memorial. The International AIDS candlelight Memorial serves as a community mobilization campaign to raise social consciousness about HIV and AIDS. [00:03:00] The memorial serves as an important intervention for global solidarity, breaking down barriers of stigma and discrimination and giving hope to new generations. Leadership by people living with HIV and those affected by HIV is an important part of the International AIDS candlelight Memorial, along with education, and social interaction. [00:03:32] And now we've got the same page with the letters of the way [00:03:37] the Governor General's one is going to be read by Jane a [00:03:42] message for the eight aids candlelight [00:03:45] cure. [00:03:47] This evening, New Zealand is a joining people around the world to honor friends and loved ones who have lost their lives to AIDS. We remember those who champion the cause of people living with HIV and AIDS, campaigning for research, support and effective treatment. We remember also the scientists the medical professionals. His dedication was delivered a better prognosis for people living with HIV or AIDS and enabled them to plan a future with confidence. We celebrate that progress, but we cannot afford to be complacent. We owe it to those who lost their battle with AIDS to provide and promote conversations about safe behaviors across all our communities. I wish everyone associated with advocacy, support and education about HIV and AIDS. All the very best with this vital work from the right honorable Dane Patsy ready. Governor General of New Zealand and also the [00:04:48] patron of usernames should thank you. [00:04:55] Now from the Labour Party, ground hasn't magically appeared lucky normally does the G. So Philip Rogers i think is going to read that one Sandra. [00:05:06] Apologies I'm not as handsome as grant and not making as much money but I'm here. [00:05:13] I've got the speech here on behalf of the Labour Party, to body positive, positive woman to New Zealand AIDS Foundation and all those who helped organize these events and undertake the important work on HIV and AIDS. We thank you. [00:05:29] Ha on this occasion, our minds tuned for the people of our generation who were young men and woman as the world became aware of age, and who did not survive and to the middle age. We mourn for them. And we think of their family, friends and families who saw him die from a disease, which we did not fully understand. events like this and symbols like the quotes that have been made around the world are public memorial to what we also deeply felt private losses. Today's from friends and family, please know that your loved ones are in him. But [00:06:05] as a DJ to pass we have learned far more from HIV and AIDS. But steadily was much more to do. The theme of this year's International AIDS candlelight Memorial reflecting on our past and preparing for the future. [00:06:20] around the world. 33 million people are living with HIV today. [00:06:25] for international solidarity, access to medicines, education and reducing stigma, we can make the world of HIV and AIDS. Here Hi, I'm at the villain in Israel and found that it's like New Zealand ah foundation have launched the ending HIV campaign. [00:06:45] Labor We are proud to have signed on his own Labour Party app to that campaign on the big guy out in February 9 2017. [00:06:54] This is an ambitious campaign for in transmission of HIV by 2025. [00:07:01] We can do this together with the combination of safe sex education and practice early and regular testing and access to medicines, including PR e pA where we can stop the transmissions. But it is a big ask. And one all of us have to support with long term dedication and commitment. You have that from the Labour Party, we will support waivers. But you also acknowledge tonight [00:07:31] we have those who are living with HIV, living with a chronic illnesses tough but more so with HIV do still significant stigma attached to positive people. We can only break that down by talking and listening. As one positive person has said you can live with the virus but the statement will kill you emotionally. We encourage all of you to talk about HIV, that sex any way we can fight the stigma. So for all of those living with HIV, we acknowledge you your courage and we will give you support. So all of us on this international age can tend to like Memorial Day join together and say for the sake of all those have gone before we can in HIV and AIDS together. He Erica [00:08:26] Erica will bring us words of wisdom from the National Party. So I couldn't resist same [00:08:34] reasonably short sweet too but so I'm [00:08:38] here to read a message on behalf of the next opponent. [00:08:43] This This year's theme for the [00:08:45] memorial reflecting on our past preparing for [00:08:47] our futures particularly [00:08:48] important after farm it [00:08:50] announced funding for through the drug provider which provides protection to prevent HIV infection. The accessibility other struck will significantly help reduce the prevalence of HIV in New Zealand. Though HIV infection rates are low compete with other countries, we've got to continue to do more. They're still supports the New Zealand aids foundations aspiration to make New Zealand HIV free by 2025. [00:09:21] That was the message. [00:09:27] And now kale will bring words of wisdom from the Green Party. [00:09:34] Everyone attending the International AIDS Memorial. This provides a special opportunity to pause reflect and remember those we have lost to HIV AIDS. The Green Party joins your of this community [00:09:54] of collective remembrance. [00:09:58] The last few years have unfortunately seen a rise and people being a diagnosed with HIV. [00:10:07] We still desperately need help promotion work happening to ensure that people know the risks faced [00:10:17] we must remain remain vigilant to HIV AIDS, and the hope that the people do not continue to suffer unnecessarily. As treatments improve and people's quality of life continue to improve. Let us not forget the many talented and beautiful people we have lost too soon. And this pending neck. [00:10:45] We wish to acknowledge all of those that have stood by their friends on often painful journeys that can be a long and lonely path. [00:10:57] And how Tara mini people living with HIV AIDS have been gay or bisexual mean for face double jeopardy of prejudice associated with it openness and sexual orientation. [00:11:14] The Green Party is proud to have always taken a strong stand against prejudice and to play the role and making things better. We will continue this needed work we will remain committed to working towards a world without prejudice and seeing people get medical and social support that HIV AIDS suffers need. [00:11:41] And the memory of those taken to saying the Green Party. [00:11:54] I like to call on Heather Sangster. Smith, number of positive women member of the positive speaker's bureau Heather lives above Wellington harbor and enjoys people and solitude and equal measure. Sounds wonderful does not [00:12:14] catch Oh, I'm really really feel quite privileged to be able to stand here. [00:12:21] I'm standing on the shoulders of many of our fob is from the 80s and 90s. [00:12:28] very conscious that we here to to honor the memory. [00:12:35] I would like to honor the women [00:12:40] who were at pioneers. [00:12:44] These women with the mothers, the daughters, the wives, positive women who got together in the 80s and 90s. And looked after each other. These sons were dying a lot of them and they need to support [00:13:05] the mothers who seed He is my son, and I love him. [00:13:14] I also want to honor the woman who worked at our female voluntarily and on the payroll way back. I've got Trish McBride with me today, who is one of the early pioneers who worked alongside [00:13:31] many other women and looking after the mothers and the women and the positive woman. And of course the young men who were dying. [00:13:44] One particular woman who I'd like to honor today, some of you may remember, sister Paula Britt Kelly. She died 10 years ago. And I would like to honor here, I never meet you but I did correspond with here. [00:14:04] I wrote to her her religious order, recently telling them about this particular event. And a sister wrote back who was one of Paul's compatriots. And she said, you'll do well with Paula breathing his spirits with you. [00:14:27] She went to Athena and in 1980 Stephen, he matched and apparently and see what can I do? They want to do but taken aback by this yc was will none who was the to help and roll up your sleeves. [00:14:47] She was willing to learn she was willing to listen and her speeds but she was also there to companion. Anyone who was the victors by HIV and the dying. [00:15:03] She would sit by besides along with the other woman who worked with here. [00:15:10] She became an advocate and an educator, intern to the Human Rights Commission. [00:15:17] She felt that who calling was to the people who people on the margins because she believed that square who God dwelt [00:15:28] Paula's message to the volunteers, you came into our finances, what can we do? She seeds. He's in there and do some loving. [00:15:41] She also said famously, my God is gay. And I'm going to add my god is HIV positive and beautiful. [00:15:51] Trish wrote a home for the mothers way back in 91. [00:15:58] I'm going to read part of the problem to you. She wrote it for the mothers that she was campaigning, he also made part of the quotes. [00:16:09] Son, I conceived you enjoy that not for this. [00:16:16] for nine months I bore you, but not for this. [00:16:22] Played with you laughed with you. That not for this. encouraged you can do visa, but not for this. times of peace and pain, of loss of game. [00:16:41] Not this. [00:16:43] But somehow in this crazy screaming grief, as still point of tiny light exists, as I begin somehow to see. And neighbors probably have who you most deeply were called you to this time. [00:17:07] You could not do otherwise, then be true to yourself, my son. I understand. It was for this. [00:17:20] So how can we honor each other, we honor our past. The only way we can honor our future is to live in the now. [00:17:33] We are the now we are the here now enter the future. And people living with HIV is at the heart of it all. [00:17:45] I believe that and putting down good foundations. We have to be kind invite kindness, give kindness Be kind to yourself. You are honored You are worthy of love and kindness [00:18:06] seconds something which I've had to go through name my HIV [00:18:14] is your HIV a monster, a green alien invasion your body Are you frightened of your monster [00:18:24] is HIV your friend your companion [00:18:28] is HIV just part of who you are? [00:18:33] Is your HIV a gift. [00:18:38] How we define as is crucial. How we define our HIV is also crucial. [00:18:48] Seriously in terms of honoring today, yesterday and tomorrow, as love and love drives out fear, stigma height. [00:19:03] So let's Sondra past, present and future. I'd like to leave you with a quote from a priest who lived in the 20th century who struggled with love. [00:19:18] He was troubled until he found out what love really means. And he especially learned to love himself. His name was Henry noon all the neuron. [00:19:32] This is what he saved. Love asks us to go where it hurts to enter enter the place of pain to share and brokenness, fear, confusion, and anguish. Love means full immersion and the condition of human beings. [00:19:57] In a world so torn apart by anger and hatred. We have the privileged calling and ability to be living signs of a love that can bridge older versions and heal wounds. Thank you [00:20:27] Now [00:20:27] Bruce, Bruce kill master. For over 20 years Bruce killed Mr. Hayden body positive think appear support organization which provides care, support and information for people living with HIV AIDS. Bruce retired from his position as CEO at the end of 2014. But continued until April this year as chairman of the board. He leaves the organization and good standing both structurally and financially. Bruce also is a founding and life member of the New Zealand AIDS Foundation. [00:21:10] Okay, [00:21:11] thank you, Roger. That's very kind words. [00:21:17] Why called events when I'm asked to speak about something, I've got no idea what I'm going to say. So I had to reflect really hard on what to say today. And it's I took the title reflecting on our past and preparing for our future. I can reflect on our past, but I'm not sure I've got a lot of future lift, but we'll try and do our best. Reflecting on the past. I want you to look at me and think of the 30 years ago, and certainly 30 kilos lighter. And you'll get an idea that [00:21:51] what's your [00:21:52] lifestyle, I was a young gay man starting to enjoy my life. But in the early 80s, we'd heard about this terrible disease called the AIDS disease or or the gay disease to begin with, mainly from America where it was killing our communities across the year. And we were [00:22:12] really concerned about what we were hearing. At that time we were criminalized population, the gay community. We didn't want to say anything or polka heads above the parapet because again, it could result in all sorts of actions against us loss of employment, loss of accommodation, etc. [00:22:34] Occasionally, you'd hear splurge in the media about the death of film star Rock Hudson, which would shake everybody up or then later, rock star Freddie Mercury. And again, people were concerned more and more. We heard about a young man called Bruce but when it came back from America with the SEC chubby disease, [00:22:58] he lobbied the Ministry of Health. And we had quite an enlightened officials in those days. And they acknowledged that they could not access the gay community, which was virtually an underground criminalized community. So they agreed to support the establishment of the New Zealand AIDS Foundation. And I was delighted to be part of that founding board. And to help it set up the fights and the struggles we had, I would just so many I can't begin to tell you about the more. [00:23:34] But our first efforts, when we were told we were not to be political was in fact, we were political. We want to support Wellington, Member of Parliament friend wild and establishing who have a sexual law reform bill. It took 18 months of real fight to get that through. And I can only call what we had against us lobbied against us was a massive, very well, the rich religious order. [00:24:03] The bill passed in 1986. And of course, the parties that followed that day and night, I can tell you were just something quite amazing. [00:24:12] But it was not easy. It was at a cost. In this country we've lost over 750 people have died to AIDS or an AIDS related illness. It seems like ended his life compared to what we saw. In America were over 650,000 men have died from AIDS, mostly game man. That's hard to fathom that number. But if you add up the number of Americans that have died in World War One, World War Two, the Korean War, the Vietnamese war, Iraq around, add them all together. And still, more men have died from AIDS in America. And the great political fast that we've done with those other issues, protection, Vietnam, but society mostly ignored game in prison, Reagan couldn't even bring themselves to say the word AIDS. So the fight was done for us mostly offshore. But here it was also a fight to get on. And although medication maintains the health of most of us today, there are those that it cannot work for. I lost the partner because simply the medication just would not work. The early days, the side effects was so horrendous, he preferred the alternative. [00:25:36] But for me, I was wanting it out of the taste Juba out of the bar tree so I could hang on there. [00:25:43] And it's worked well for me. So again, I want to say briefly reflecting on the past, [00:25:54] it's been the best of times and the worst of times, the best of times were an amazing response by our community, one of overwhelming love and support, particularly in support of those who weren't going to live longer. And this is what this event is about. For me, it's coming to remember those who have gone who have gone before us, and to have a moment of thought for them because they fought and paid the price for what we have today, a better place. And again, for those coming through today. They've got treatment and medication that will keep them well under live and medication that will stop the infection. So we're not far from getting through this pandemic, that again, today is about remembrance and reflecting on the past. And for the future. Well, I've got a pretty good one mapped out for me to [00:26:54] thank you very much for your time. [00:27:02] Thank you, Bruce, [00:27:05] know like to call on Gertrude, egg Bowser, excuse me if I've said it wrong. They didn't give me a practice of that before I saw. [00:27:15] Great food first became interested in public health because of the HIV epidemic in Sub Saharan Africa, as an undergrad student, group conducted research on a&e mother to child transmission of HIV in Tanzania. Over the course of her career, Gertrude has had leadership roles in the health care space at private and nonprofit healthcare organizations. [00:27:45] tenneco it's a real pleasure and an honor to be here. And not only am I here on behalf of the New Zealand Gates Foundation, but my friends, neighbors, and family and the New York City, New Jersey, Philadelphia metro area, who have been impacted by HIV, and also the friends and family in Sub Saharan Africa. And I'm going to try not to tear up because as Bruce was speaking, I was thinking back to the people to the neighbors. [00:28:16] HIV and AIDS is arguably the greatest public health challenge of our generation. In 2016. Alone, we saw 1.8 million new HIV infections worldwide, of which 244 came from New Zealand. While this sounds like a low figure in comparison to the global total, it is our highest number ever, and far too high. For a high income country with free access to prevention. Over 37 million people are now living with HIV around the world. And each year, around 1 million people still die of AIDS related illnesses. Since the start of the epidemic, we've lost over 35 million million of our brothers and sisters to the virus. The world is now committed to ending the AIDS epidemic by 2030. And the theme of this year's memorial is reflecting on our past preparing for our future. The Extraordinary accomplishments of the last 15 years both in increasing access HIV treatment [00:29:24] in the developing world and reducing his mortality have inspired global confidence that their target is an achievable one. Over the last year in outer on New Zealand, we have seen exciting developments, which we anticipate will soon lead to a drop in infection rates. After more than three decades, we have managed to maintain one of the lowest adult HIV prevalence rates in the world. This has been achieved through consistent promotion of condom use to prevent HIV and se is community development. Government partnerships work to eliminate HIV stigma, support for human rights and effective public health legislative change. Today, the epidemic is comparatively small and concentrated then, and it is in this contacts that the potential to reduce halt. And then reverse and and new HIV transmissions is a real possibility. At the same time, annual diagnoses have been rising at an alarming rate for six years. [00:30:36] The opportunity to turn this around lies in the fact that the world of HIV prevention has been through nothing short of a revolution. recent scientific breakthroughs, supported by real world evidence have demonstrated that treatment based prevention can complement existing content promotion efforts to drive down new HIV infections. We know that, for example, that the risk of serious illness or death is 57% lower among people living with HIV treated early compared to those where treatment is delayed. We also know now that if people living with HIV are able to achieve and maintain an undetectable viral load for more than six months, HIV is not transmitted during unprotected sex. It's for this reason that ends up a campaign for the removal of the threshold for treatment access, and we applaud for max decision. This decision was in line with all the scientific evidence and the World Health Organization. This year we saw the funding of prep or pre exposure prophylaxis, the daily medication taken by people who are HIV negative in order to reduce their risk of HIV infection. We know their PrEP is extremely effective at preventing a IV transmission. And we've seen success in other countries. We often compare ourselves to England, Australia and the US. We anticipate that this funding will have an immediate effect on HIV infection rates and New Zealand and look forward to seeing the 2018 fingers hopefully go down. [00:32:22] In the context of treatment based prevention, we must of course continue to promote condoms, as the most effective prevention tool for HIV STI is at the population level, maintaining higher rates of use that 30 years of community based health promotion and social marketing has achieved. We must also significantly significantly increase the level of HIV testing for those most at risk and finding the estimated 600 to 770 people living with HIV in New Zealand but who don't know it. The 2030 agenda versus attainable development and agenda which New Zealand must report is progress against is underpinned by the values of inclusion, equity and social justice. If as a sector in our era, we can live these values, if we can secure the highest levels of government commitment is we can inspire, mobilize and work alongside key impacted communities. If we can collaborate through innovative and progressive cross sector initiatives. If we can successfully challenge HIV stigma and discrimination and provide better support to people living with HIV, then we can end the transmissions, new transmissions of HIV and New Zealand. There's much to be done for today. Let us collectively honor celebrate love and remember the people who have come before us. We have over 30 years of learnings to reflect upon and learn from and so we leave here tonight. As we leave here tonight. Let us commit to ourselves that we will do everything in our power to prepare for future without AIDS. Thank you [00:34:21] never going to hear from blazer tallness have said that right? Pleasure was born in the Philippines, now living and working on New Zealand to us here today to share his experience. [00:34:35] Hello everyone. My name is Glaser. I arrived in New Zealand two years ago from the Philippines. During my time in New Zealand, I met this very wonderful men who is positive. When we spoke about his HIV status, I was shocked and somewhat dissolution because all I knew was the pain and suffering I had seen in the Philippines. The public health system in the Philippines is overcrowded. And funding is limited so I only thought of the first but my partner explained to me that through taking his medications, he could not pass on the HIV virus. [00:35:18] I learned a lot of bought my partner that day as it took him a lot of guards to tell me I was proud and loved him even more. Even though I still had some interfere I believed in him. [00:35:34] Today, I understand and feel we need to do more in spreading the message of hope through you because you and sharing our experiences. I think it is important to receive voluntary HIV testing and counseling as a couple or as individual you will receive the results and share your status with the support of a counselor. [00:36:00] arranged a prevention treatment and support options can then be discussed and decided upon together. And thank you for letting me share my experiences and I say to all those here today to continue to encourage and educate spreading the message of hope and understanding. [00:36:30] And now Karen Richie no problem saying that name. [00:36:34] Karen Richie known as mama Karen, set up the carrier trust and often as a support network. For those dying from HIV and AIDS. Karen is involved with the under 35 hours positive support group. Karen also works alongside body positive in the Eden zero Dave, and many other community based support networks, but also hiring a full job full time job in the health sector. [00:37:02] First, I'd like to say a huge thank you to Wellington for having me here today to say a few words about our dear friend Vic, who passed away last year. [00:37:13] Since the 80s, I've had many friends [00:37:16] who we've lost and passed away through [00:37:19] HIV AIDS and it's always in everyone is a huge loss [00:37:23] to resolve [00:37:27] a man of great knowledge manner and wisdom [00:37:32] I understand last year from Ron that he was here carving up the ham and participating and helping in the kitchen he was a busy and he wasn't a so that was great that he [00:37:45] supported always body positive. [00:37:49] I first met [00:37:49] Vic probably 2530 years ago, I really can't put a time limit on that. [00:37:56] He said to Divina and while I Gabor who was this one that you call Mama, [00:38:02] I want to meet her. [00:38:04] So they brought him around [00:38:06] how I had an apartment and K road and [00:38:09] I don't [00:38:10] know from that day on we just clicked and had the most amazing amazing friendship and that grew to a strong love and respect over all those years. [00:38:24] He was [00:38:24] very very protective of me. Those who knew Vic you would know that he didn't suffer fools well [00:38:33] and if somebody [00:38:36] was disrespectful or whatever to somebody he loved and cared about [00:38:40] they face the consequences of his the rest of its mouth one way [00:38:43] or another [00:38:45] and that was certainly our Vic [00:38:51] and [00:38:52] just occurred with a funny moment for me was [00:38:55] not funny to begin with. [00:38:57] Some years ago now it was Vic myself and Natasha Allen who since passed away from cancer a few years ago there's a group of us standing outside camo having a drink and etc etc. And this car drove past and I've been known to us at the time that had bb gun thing is you know that we're firing pellets because as it went past Vic [00:39:22] got one inside of the face so I took him to [00:39:26] the toilet and you know we [00:39:29] push that out of his Facebook really bored [00:39:34] and I said we need to run the police on this Vic and I say to the staff can you replace well when the police will victim of police was up [00:39:43] Yeah. [00:39:45] But I said to him that could have been your eye and they could it could somebody else could you know blues I from doing this. So it became a standing joke later on. With Vic he'd say oh yeah, the tie these two witches start your mother beside me not one of the pitches could save me and they were the witches. Okay, right. Yeah, it was a standing joke with [00:40:06] him about the bullet and cheek. [00:40:10] And then other night he wanted [00:40:12] us to stay with me or Jordan when he came up from from Wellington. [00:40:16] And [00:40:17] one night he rang me and it was something happening and he said I should have come up I should come up to me down [00:40:22] McDonald on your shirt. And I said well, [00:40:25] you know [00:40:26] come up with was a Friday night I think it was a Friday afternoon. And whatever it was was happening on the second day. And I've got a nice It was a margin and has a [00:40:36] lot of those businesses those trail of hauling overnight thing is [00:40:41] and I see direct Look, I'll get [00:40:42] my nice, let's get you on the truck, comfortable big truck to come up. [00:40:47] I see them you just got to get me. [00:40:50] So anyway, my name is actually bought my ticket, we organize everything. And then she went over and picked him up with family to come back to her place and Martin until the track left And [00:41:00] anyway, I went over to gi and often to pick him up. And then the [00:41:04] truck came Leah and it was I had my jammies on I'm not getting brace for nobody at three o'clock in the morning. [00:41:10] So I've got pajamas on know, baked up looking like [00:41:14] and he gets in the [00:41:17] car and he's cracking [00:41:17] up laughing. He said, Oh my God, he's out of the river senior [00:41:21] look like that. [00:41:25] So you know, we just had some wonderful [00:41:27] last and times and [00:41:28] shade so many personal [00:41:32] parts of our life that I would never repeat about his trusted me with that I would never [00:41:39] was that he was a very proud man. [00:41:42] He actually passed away on my birthday last year, the tray and my 65th birthday [00:41:47] on the 28th of August. [00:41:53] And for me, [00:41:55] that just gives me a bond with a lifetime bond. [00:42:01] I missed this man, I truly miss this man. [00:42:05] And I hadn't [00:42:06] really brief him until [00:42:08] he got three or four weeks ago, and I was a child to Peter's house with Lance in it. [00:42:13] And I just lost. I couldn't control my grief. And and I think Charlie MIT for [00:42:23] figuring that out for letting me [00:42:25] bring that out. [00:42:28] And [00:42:30] I really need to acknowledge Bruce and Ron. And I say this from his mouth. [00:42:37] He [00:42:37] loved and respected you. [00:42:40] And he always said that, to me, always. The love he had for you both was miserable. [00:42:48] Roger, he always say that he was very, very grateful for all the help that you gave him through this journey with wings will housing all of those. [00:42:58] So he ignored which is huge. [00:43:04] I know he's a big loss to a lot of people. [00:43:06] And I'm sorry, I wasn't gonna tear up. [00:43:09] I'm trying [00:43:10] to. [00:43:12] So I'm really not going to [00:43:15] go much further into this because I think we all know how we figured out that [00:43:19] way. [00:43:20] But a friend sent me this he Google something he was looking for something, it occurred everywhere I seem to go lately, I see Vic. And [00:43:30] he was googling this and he [00:43:31] sent it to me not blown up. And it's not very good, because it's you [00:43:36] can't really read it but his face. And there's a verse [00:43:39] here. And that popped up on Google. [00:43:42] And I'm going to read this verse because it's very, [00:43:45] I think, [00:43:46] appropriate. [00:43:48] So I finish my church, and I thank you again, for having me here. [00:43:54] What this is the verse what lies behind us and what lies before us tiny matters compared to what lies within us. [00:44:18] Just some support agencies mentioned here, body positive positive woman and insert a [00:44:26] wonderful the spokes person mentioned for each of us would like to come forward and say a few words about what we do what they do. Thank you. [00:44:38] Um, cookie cutter, my name is Steve McFadden can learn most here. I've met people before. I'm a counselor in private practice here in Wellington. And I work mostly with LGBT people and people living with HIV. [00:44:55] But normally in smaller groups, and so talking in front of people, when I was asked to do this, by some chance, [00:45:01] forgive me. [00:45:03] So, and I'm also living with HIV myself. I'm also a peer support navigator for body positive. [00:45:13] And so support for people living in Wellington, those kind of trance transformed of the past few years, and it's largely been a result of a team medications turning what has what was a manageable illness into chronic condition. the mindset of body positive and other agencies around the world is that what they've taken is to treat HIV, not as, as victims needed an only primary help such as wins and housing, etc. Although that is still a really important part and component of support, but rather to treat HIV is any other normalized chronic condition, and to empower people to be in control of their own lives. [00:45:54] And so essentially, moving from a handout philosophy to one, I've been empowered to step up and be part of this decision making process for services that are supposed to be there to support us. [00:46:06] And this is a guide in line with principles and guidelines set out by UN aids, of deeper which is greater involvement of people living with HIV and AIDS meter, which is meaning involvement of meaningful involvement of people living with HIV and AIDS. And also me what, which is meaningful involvement of women living with HIV and AIDS know should forget about them. [00:46:31] But they're already important. And, and it made a big difference as well. Also, the there was a free, cheaper audit, which any organization that offers support for HIV, as Welcome to undertake, you know, I think it'd be really helpful to see a few more organizations taken up that opportunity in Well, you know, in New Zealand. [00:46:54] So with any transition from kind of step up, or kind of hand out to step out, a platform for support as hasn't been without as hiccups. But I think, you know, especially in my life, and now we're seeing some really exciting things happen. There are a few support options available in Burlington. So aside from my Counseling Service plug [00:47:17] ins, and he also offer some limited counseling for people living with HIV, their family and friends affected by HIV. [00:47:25] But its body positive, that have really taken the lead and developing and providing peer support pathways for [00:47:34] people living with HIV in its peer support has proven to be the most effective way for people to come to come to terms with a diagnosis and on their journey. And that's, you know, research evidence based stuff. So with have peer navigation works, I'm going to depend navigators and monitoring, nothing they're looking for another one actually suffered in ones came to do that and have a chat, but also hoping that when somebody is newly diagnosed, or at risk of dropping out of care, they'll be referred to appear navigator, [00:48:06] who was also living with HIV and can talk and an open and honest personal level of what it's like to live with HIV. So things like which families or pharmacies are helpful, and you know, that kind of thing. So it's essentially to normalize the experience of how it is, [00:48:24] I mean, physically, we're going to be fine as long as we sustain or achieve and then sustain a undetectable viral load. The most damaging thing that affects us is that isolation and stigma. And, and this can happen at any stage of the diagnosis or journey even after years of living with HIV. [00:48:44] This isolation stigma is something that we all too often get used to the rather than stand up to. And that's something that we often don't even recognize anymore. So that's something I'm sure it's helpful helpful to be reminded off. [00:48:57] So from a few meetings with a pen navigator, what tends to happen is that person will become more comfortable with their status, and then feel comfortable enough to meet other local people living with HIV, and come along to one of our body positive monthly meetups. So this is on the third Tuesday of every month, and we get a chance to kind of socially catch up there be a topic to discuss, or someone else's invited to present on a topic, and they will head out for some delicious and cheap dumplings. [00:49:27] So when I started this group two years ago, [00:49:31] for the first three or four months, there were two or three of us at each meeting. And now this 35 that come along. So that's been a really successful kind of thing people value in connection. Um, so from this group, there are other activities and events that people can go on to now that they have a supportive and understanding base, such as the positive speaker's bureau and a governed by positive women. [00:49:59] And also the public positively just leadership development program. So many acronyms and the sector. [00:50:07] And both of these trainings are really incredible enriching weekends and people often go on from those things to do some really amazing things in the community. I grew from with the Wellington PLda graduates recently started project but toto to that, right sorry, the toys for today. Thank you. And [00:50:30] and so this this is a project that is its aim is to record publish an archive stories of long term survivors with a focus on local and our total stories. This project was inspired by similar long term survivors projects, one happening in the world in San Francisco called Let's kick ass I'm not being rude at eight survivor syndrome. [00:50:53] And which was started by San Francisco based long term survivors group, who while suffering from a survivor syndrome orbit, witnessing this story has been eradicated from the public record within their own lifetime, which is clearly not okay. [00:51:11] So all of these services groups and projects provide support for people living with HIV. And it's really great that newly diagnosed people are now getting into the support straightaway. [00:51:23] It's important to remember that quite often, it's people living with HIV who have had had it for a long time and kind of just get on with it. Who can be at most risk of isolation, and internalized stigma, and even dropping out of care. And as we've seen, there can be some pretty devastating repercussions when that happens. [00:51:43] And so when I, you know, I get a little concerned when people say I don't need support, because I used to say that as well. [00:51:52] There are also other online platform for support such as the Institute of many Alton, which is another PLda graduate, started that one, and also positive few ways amongst others. support to me means connection with somebody else, or other people. And connection requires a kind of exposure of the self. And exposure [00:52:16] is the antidote to stigma, and isolation. And so wherever you are on your journey, or where your companion in somebody on a journey, then support can make a real difference. On behalf of people living with HIV and Wellington, I'd like to thank James rice, who's here somewhere, and the ID team at the hospital and also wrong. And Eric, for organizing today. And also thanks for listening, listening to me today. And if anybody wants to get in touch about any of the services folks within please do come say hello, thank you. [00:53:00] I [00:53:01] talk about positive woman positive women's support organization for women and families living with HIV. It was started in 1990. At that time, there were a lot of gaming being diagnosed with HIV. And we started at the end of the 80s to see women being diagnosed, but there were no [00:53:24] facilities available, really, that were women focused. And as a result of that positive women but started a lot of those women that started the organization with women living with HIV, and most of those women are no longer with us. And I just really want to acknowledge those looking back at the past because it was because of those women that positive women is still here as an organization 28 years later, [00:53:50] you know, HIV, I'm going to talk specifically about women because that's our focus. But you know, if you look at the the earlier days of HIV [00:54:00] wasn't called that it was called AIDS. And women in earlier days were encouraged to abort their children. were encouraged not to have children. And what we've seen over the years because of the antiretrovirals, that women are now able to have babies that are now not living with HIV. Now with the [00:54:22] also with antiretrovirals in the new week, was you able to have unprotected sex with a partner and have babies naturally before that they used to use the old turkey based method or infertility going to the fertility clinics. So there's been huge changes in that regard for women. And [00:54:40] I guess [00:54:40] one thing I really wanted to focus on Monday going to do a very short talk because I know you're tired at the end of the evening, Nelly. But something has been a huge concern for us is in 2014, a woman called Tanya Booker was in hospital. She was very, very sick, she had been sick for two years, she had been in and out of hospital had lots of operations had lots of blood tests, and nobody could identify what was wrong with her. Finally, after having PCP one of the AIDS defining illnesses, she was tested for HIV and was diagnosed as positive and the supposed to be okay, she's going to get well get rid of the PCP and get on to enter virtual virals. Unfortunately, the PCP had ravaged by it so badly that she died for five days later. [00:55:33] At the same time, we also had another woman executive, same time who spoke to earlier this evening in hospital with pretty similar chronic conditions been sick for many, many years, in and out of hospitals tested, nobody thinking to offer an HIV test finally, for this woman, she was offered a test and and survived However, she has really huge [00:55:58] competitions as a result offered it so her life is no longer what it was before she was diagnosed. As a result, because it a woman has been campaigning really strongly over the last few years to ensure that they have coefficient offers tests for women, because women are not seem to be a natural risk group. So it's really disheartening to hear that last year, a woman was in hospital again, and in a coma. And finally they decided to give her an HIV test. And she was diagnosed with HIV and died three days later. [00:56:36] So I [00:56:36] think you know, for myself at this is my city as a year of living with HIV. I'm not quite sure how I survived those days, in when I was diagnosed when I medications. But when I think that, you know, these two women, three women actually, [00:56:52] one thankfully survived through there. But the other two dying in this day and age where there's absolutely no need for people to be dying. [00:57:01] Statistics show that 46% of women are diagnosed with a CD for countless than 376% of women with a CD for count below 500. For those of you who don't know what a CD for counters, that's basically your immune system. So the lower their account is, the less healthy you are and the more difficult it is to recruit. So I just want to leave [00:57:26] with a message really, and I'd like everyone in the room if you can to really campaign and any any way that you can, that HIV testing be offered as a routine diagnostic process for anybody, including them. In particular, there's no you know, type, anybody can contract HIV. Thank you very much for [00:57:56] Hello everyone. [00:58:03] Vote for me know [00:58:08] your thoughts. So my name is Lena, excellent on the community engagement coordinator at the Newseum AIDS Foundation. [00:58:16] So networking, support them with other organizations plays a big part in my role. Without the support, we we wouldn't succeed at all. Not only organizations, but our wonderful community members [00:58:32] are so important. Without all without all of us together, it would be impossible of reaching our goals. So and in new HIV transmissions, as well as D stigmatizing HIV within our communities. More so towards people living with HIV by educating with the UVA and you equals you campaigns which is coming out shortly so watch this space [00:58:58] in Wellington, [00:58:58] the health services such as regional health and public health, Caucasian man I [00:59:05] sexual health needle exchange medical centers ends at PC and also with body positive when you're pulling some base and many more all of a close working relationship and as always been a massive supporter which we are truly grateful within Youth Services an organization such as vibe [00:59:29] evolve [00:59:30] youth one I have to say this slow youth one stop shop is that right? You're [00:59:39] just you're [00:59:41] inside out outer space is telling lucky rainbow Mogra directions directions you services, you services trust capital youth services to name a few. So up their support is so important in forming our queer trans took the top of the fuck away he on the students around HIV AIDS stigma and testing and our prevention strategies especially with prep be more accessible [01:00:12] bit unique. [01:00:14] Massey fitted a while tech at it and you call [01:00:21] universities are also great supporters and have had their collateral condoms and testing in their health services. Rainbow venues such as I said Adams IV bar fringe bar affiliates cafe unity box for their ongoing support throughout the years and also Wellington's a rainbow support groups as well. And our wonderful volunteer not forgetting our wonderful volunteers group that are continuously weekly supporting packing condoms and distribute that get distributed around our region's regional venues from telepathically to Hawke's Bay, all the way down to Wellington. also supporting our sponsored events such as art and the park [01:01:06] Pride parade and World AIDS Day and that's just to name a few. Thank you again for your support. We really can't do this without you being killed. [01:02:39] Si [01:02:55] Si. [01:03:06] Chima Kato [01:03:06] Tina. Tina cater cattle know my had him I [01:03:14] don't know I am calleary. [01:03:18] I was sitting over there ready to do our little speech. For some reason I [01:03:25] don't think it's some [01:03:28] some can just say how I feel. [01:03:33] When you saw the names on the wall there [01:03:37] are realized I knew nearly half of those people. [01:03:42] I was honored and privileged to meet a need to two years ago His name is Ty Donahue. Now, he was HIV positive, he latest come to the eight. But during this time of his owners, he did not sit idly by and silence suffer. He went out he taught upon themselves and he became approach it which was the national people living with a union and magazine. So he can give to those people like himself. information regarding medications available [01:04:21] safe loving, advocacy and support [01:04:26] that was dealing with go over the years [01:04:31] what was known as the NP l w a union his progress and today is known as party positive. [01:04:42] I'd like to give a big thank you to Bruce Koba. So I have actually known for quite a number of years. But [01:04:52] to me personally, body politic is an outstanding organization. [01:05:01] why some people might think are more on to body posture [01:05:07] because they give back to those who have HIV and AIDS. What society and even some of our own communities have taken away. Love understanding, compassion, [01:05:25] guidance [01:05:28] and heart [01:05:30] but most importantly that gave them a voice. [01:05:35] One of the most important things that they had given them back as [01:05:38] dignity [01:05:42] I was very privileged to see proportionately tarragon here [01:05:49] like Karen, who I've known for a few years she mentioned some you watch [01:05:56] somebody can make a [01:05:59] mistake federal [01:06:04] I was worth the battle fast 24 hours he was in hospital here in Wellington. iOS has bodyguards I ensure no one to stage or when you want to resist [01:06:20] I took [01:06:23] I [01:06:27] took on the role of cake ever [01:06:30] I change this beer lemon I changed his diapers I took them for a sneaky smoke outside [01:06:40] yeah there you go to lock me up in the hospital [01:06:43] but [01:06:47] the whole thing over these years it's become too much for me to select Cobra I lost my brother many many years ago when the bars to space around but not really recognized. My brother stumble you know his name was God he used to live and work for prestige trouble. Now fortunately back then people could see [01:07:13] their face or when when you have the bars new passing away, but I know because I could see I could see the lesions on exams under the skin. [01:07:27] I want to study people it takes me a while to go my brain for anyone who's passed but I remember [01:07:37] the bacon beckons die. They can fill out Memorial It was like a grand to paint loud laughter, sadness, fond memories of ice I loved ones that we lost. [01:07:55] We shouldn't pick it that we should bring it back to how it was. This is not just as taking a few hours that are down on Sunday once in a while the show up and say you know we support [01:08:09] I am going to try and get the community to come together next year from my friends and we can agree a big house was we hit the quote remember that [01:08:22] we are [01:08:24] we are our friends loved ones profit is TechCrunch t and d s way to life [01:08:36] and that's how we should remember them [01:08:39] will fail fond memories of clans head and your last hugs [01:08:48] intimate moments She is [01:08:52] our let us not let the light been out of fade away live it Bernie and brighter and our hearts [01:09:04] and grace body posture does a job as I said before that what the frontline. We have great organizations who helped promos is my friend Leo has explained before I make sure the one of the founding members for NTP say we distribute condoms What have you we do our part [01:09:34] will only support but I think a little bit more needs to be done [01:09:39] I noticed that his body positive was their inner gassed people I think better they came back everything they gave him his community he passed the way he wanted [01:09:54] as though it was going to a coffee shop and having a coffee everything was done according to his wishes they will know and the to say you can't do this country there but when push comes to shove on the last day when history to travel back from Wellington up to where he was was partially positive that steep Who will pay for the transport will arrange the ambulance to pick you up and so forth. From what I hear it was an excellent Tommy sorry for you [01:10:33] speak time writing a single model for a class [01:10:42] yeah [01:10:47] okay. [01:10:48] We must support the good work that the dead has been done by such great so I body positive and Nicole prefer the candlelight memorial was a grand defeat. [01:11:01] Let us know always allow that light to fade back to fit ever been brought up in our heart. Kira. Kira Kira [01:11:15] Kira [01:11:26] I've got some words to say about to fund a funnel now. Define a foreigner is attacker taboo. We community group based in Wellington that welcomes people have diverse sexual and gender identity. Mary are the indigenous people of New Zealand, Taka, Taka week and modern terminology is a Mari individual that identifies as queer, gay, lesbian, bisexual trans. The cap hapa, or purpose of the group is a prime is primarily for taco top way. Billions community talent stories and leaving a legacy that will inspire inspire others. To find a farmer exists for the type of top of a community and give us meaning towards Kalaupapa through different threads, cup of Harker advice, advocacy and support of LGBT community. We take this time to thank you for sharing and participating in this age international candlelight. Thank you. [01:12:39] closing words [01:12:42] may the road rise to meet you. by the wind be always at your beck by the sunshine warm upon your face, the reins for soft upon your fields. And until we meet again. Meg of whole view in the palm of her head.

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