Nicki Eddy and co - New Zealand AIDS Memorial Quilt (1992)

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[00:00:00] This audio comes from the collections of the New Zealand aids Memorial quilt. [00:00:06] And I'm delighted to be able to say that our program this afternoon is, is brought to you compliments of Mitsubishi Motors, Mitsubishi Motors, New Zealand limited everything we do, we do for you. Here don't use internet sometimes convenient to forget that we're living alongside and increasingly with HIV AIDS. It's now an international epidemic penetrating every part of the globe, and every corner of society and My guests today are from the New Zealand quilt project. Nikki Eddie, who is the quilt convener for the New Zealand called Project. And Ellen bowler, who's living with HIV. Nikki, good afternoon and welcome. It's good to have you here at Radio Pacific. And I'm delighted that Mitsubishi Motors New Zealand limited of my the hour possible. [00:00:48] Good afternoon, Mike and me. It's wonderful to be here, Ellen YouTube, [00:00:52] thank you very much. You must be pretty excited Nikki, because I know you're planning on a trip off to Washington very shortly or away us to to the Washington international fans, [00:00:59] this squat, [00:01:00] right universal unveiling that happens in the first week in October. So [00:01:05] yes, well, yes, I am getting very, very excited about it. And we've just had tremendous amount of literature in from the States. And it's getting more exciting all the time, particularly because at this point, there are 17 confirmed countries or other countries in the world that will be there. And it's just going to be awesome. It really is. The New [00:01:24] Zealand project is part of an international movement, which began back in 1995 and San Francisco in 20 countries. In fact, I think it's more than that does that 2343 [00:01:33] countries [00:01:35] worldwide are involved in the International Court project. And as I say you're off to the unveiling of the the International AIDS Memorial court in Washington DC. I've been talking around the station over the last couple of days about the New Zealand quilt project. Nikki and everywhere I I mentioned the the word people say quilt project. And of course it's one of those words how to get to hang around with I say quilt project what what is the coolest project? So now, let me put the question you again, because there are people all over the country listening to radio Pacific this afternoon as I do my Mike's doing something different disaster, right. So what is the truth project, the coat project, [00:02:10] six by three panels that are individually made for people, or Pete persons that have died of a one panel thing is sewn into a block of eight [00:02:23] been creating a 12 foot by 12 foot block. So we speak about panels and then we speak about blocks. But in fact it is one block that makes up the cool project. So [00:02:35] why are you involved? [00:02:36] Why am I involved? I lost my 33 your brother to AIDS last year and I found and after he had gone was approached by members as a cool project at that point in time to create a quote for Robin. And I found it to be a really positive way of dealing with my grief with my anger. So many things that was a really positive way. [00:03:02] And it's a memorial Memorial project. Yes. And you've been giving tirelessly of your energy to this to this project and New Zealand and I know that you're only one of many thousands across the world or around the world. [00:03:15] This This training is the way we hear in Oakland, a very small group of volunteers that just dedicate tremendous amount of their time to getting out there and [00:03:30] you're preaching the word so to speak, or I doing is creating is awareness. We've had the blocks into four schools in the Oakland region so far, and the response from these kids has just been awesome. Again, just the fact that it's not just facts and figures on a blackboard anymore, they can see that each panel represents a person's life and this has been a person that has been ingrained Sana Sana brother and uncle, a sister Natalie, and on and on it goes. [00:04:00] lovely people in New Zealand, we lost [00:04:03] approximately 300 people to it New Zealand, we have on the New Zealand GoPros 109 names I counted them all yesterday, again, which is one third of the people lost aids in this country, which makes New Zealand school project, the largest court project in the world. If you look at other people, how many people we lost 303 hundred just did just approximately 300. The last statistics I heard was just [00:04:32] Just don't be almost at that point in New Zealand, we're pretty well everyone in the country is in some way touched by someone who has died of HIV AIDS or is living with HIV, [00:04:48] I believe that well, and if they have not been, I personally believe that within the next 510 years, that thing is we will all have known all know of somebody that lives directly or indirectly with HIV [00:05:02] related related when we were talking last night at least somewhat reminded me of the of the Airbus crash knees when when we had that horrific airplane disaster on matter of us. Everyone in New Zealand was in some way touched by that disaster. And we're almost at the same level of numbers, how many people are there in New Zealand to be HIV, [00:05:23] HIV, nine on 800 people now. [00:05:29] Know and again, just yet, just now unless we probably double those figures, that's probably a total count of the people that are [00:05:37] positive here and using the quotes themselves. I come back to the question of, of HIV and AIDS in a moment. Ellen, I have to ask you before I get onto the question, when were you diagnosed as being HIV was diagnosed [00:05:49] three years ago? Three years ago. [00:05:53] So you're living with HIV, contagious and living? Well? How did you? How did it affect you? Can I ask you How? How did that news come to you when when you discovered that you were HIV positive? [00:06:04] I am Lyft the doctors and I was stunned. I wasn't quite sure what was going to happen. I thought I was going to die tomorrow. It just blew me away. But now after a lot of deep soul searching and looking into myself, I've come to realize that [00:06:20] I have got a disease that will possibly kill me. But right now I just got to keep on going and keep loving. Was that a certainty? [00:06:28] Is that a certainly I mean is it is it is not a certainty the disease will kill you. You could walk out of here and what we're going to reverse but only [00:06:33] about the big differences. I can see the bus coming. Whereas everybody else may get hit by a bus. I cannot move away from the bus clicks keeps going to come keeps coming towards me to be like somebody living with uninsurable disease of any kind. Any kind. Yeah, [00:06:46] exactly. There was a hard decision to fall over in front of [00:06:50] definitely people as a Kenya cancer. change your attitude on life? Oh, yeah. It makes you look at life a lot sharper. You're not so flippant. You don't worry about material possessions quite? [00:07:02] What do you think about the coolest project, [00:07:04] the quotes are amazing, just for the fact that when we take them into the schools, and we show the kids that this could happen to them, this is no longer a statistic. This is not a number, this is live real people. And the quotes, when people make the court, they put so much love and care into these courts, they become people, they have a spirit, I call it the quiet power of the quote where [00:07:28] you can just see them in You see, the loss and the love that these people are put into the courts. It's it really is amazing. And when we take them into the high schools, and we talk to fifth and sixth formers who are sexually active in this day and age, [00:07:45] and they can actually see, wow, this was somebody who lived and somebody cared for this and this person played rugby or like dancing or whatever [00:07:53] was in the school debating game over. Yeah, [00:07:55] exactly. [00:07:56] So it's really more than a memorial, isn't it? It's a it's you, it's more than a more [00:08:04] high believe it's [00:08:07] it's the stories of these people's lives. And they count as I say, matter to me, they are all people no matter where what race, what religion, what fix your reality. I just see the people behind the statistics. And that Yeah, they were all loved. And as Ellen has already said, just the love the understanding the compassion that goes into these, these quotes is phenomenal. [00:08:33] Where did it start? Where did the International Court project began, [00:08:37] okay, initiative came in the mid 80s. When young men and the San Francisco by the name of Cliff Jones created a panel out of grief and his backyard at that point in time for a move and that had [00:08:55] that had passed away from a and then a little while later, they they we're having this big march with with people that have been living with AIDS in the US. And they started to put onto a brick walls, the name of people that had they had lost to a lot of friends and family. And the young men stood back and thought, Hey, that looks like a patchwork quilt. And and basically, from that initiative, it grew to the point that in 1987, there were just under 2000 panels and the US names project. And they then had the very first unveiling in Washington DC once again. And as grown and grown and grown from there with [00:09:41] was mentioning with the 1987, when they had the first entitling in Washington, the the panels that they had made for the for the names project called on the states at that stage covered something like two and a half acres, [00:09:53] it's right. And you're now you're off to Washington to unveil something like 15 He said, The name project alone, understand that that is multiply, I don't know, I have no idea how many camels it's going to be like 30,000 30,000. [00:10:12] And that's just the names project alone. So imagine what it's going to be like with it. Plus the other 17 countries, including New Zealand, that are going, we're going to take three of the New Zealand blocks to Washington, we would like very much to be able to take them all but at the same time going on here. There will be a nice visual exhibition going on over Pickering at the same time. And there are blocks that have been basically books since the beginning of the year. So by taking three blocks, and they could also travel personal luggage as well, so that never had a lead out of your sight. [00:10:47] My guests assassinated Nikki Eddie says the quilt convenience of the New Zealand quilt project, which is an inside of an International AIDS Memorial project. And my other guest is Alan bola, who's living with HIV. And I'm sure that there are people listening to this program across New Zealand at the moment who have been in some way touched by someone living with HIV or someone who's died with AIDS. And if you'd like to join the program, perhaps there are people living in Northland, for example, who had a little to do with the making of some of those Northland quilts, which I've seen examples on yesterday. And you picked up when you're a Muslim just recently Nikki might like to call us and share the program. With with my two guests, Ellen baller and Nikki Eddie, we're here for the quilt project. And this program is being made possible by Mitsubishi Motors, New Zealand limited, and their slogan is everything we do, we do for you thought it was very appropriate that they should sponsor a special hour on radio Pacific nationwide that we might talk about this project before you take off the Washington and the International unveiling. It's [00:11:52] a mirage. So we'll probably be [00:11:56] please. [00:12:01] And now major seem to set the moment. And that involves them. They go to do what we call our unveiling ceremony. And I'll often go there and just help with those ceremonies and to talk about just just not the fact that the courts represent those people's lives lost to AIDS hearing us Zealand, but the fact that they do help encourage people living with HIV AIDS to do just that get on with living and they help their families because once a person with HIV, just this is my personal experience, you know, tells you that they are HIV that you as a family live with that virus as well and emotionally and psychologically so and it really is a positive way of helping people deal with an awful lot. [00:12:48] Yeah, go back from overseas to discover this. [00:12:52] No, no, a wall discovered my brother. No, no, no, no. When you before I came back from overseas that time, and Robin himself had been moving in Australia for a number of years. And when he became quite unwell he came back to New Zealand at that point in time and was cared for by my sister mom at that point in time. And then I came back when he was particularly unwell. We were living in Queensland, and we decided to come back to New Zealand and I came back in March last year it was and by that time, of course, he had deteriorated so badly that he needed a 24 hour full on full time career. And yeah, so that's when I sort of step step down, because my sister is sort of cope with it, although he had been mobile for nine months prior to this. This was the fact that you know, once they get basically bedridden and really lose all their independently, you know, they do need full time 24 hour care. And other than that it's [00:13:51] been cool Covina was also the education. Part of it just speaking to people, there an awful lot of people out there who still get confused between the difference the HIV virus and I itself and [00:14:07] go to the questions bigger [00:14:08] sort of questions for that one, the difference between and, of course, we often cover the [00:14:16] types of people. Well, the types of people [00:14:18] that get HIV [00:14:20] lawyers. Yeah, I mean, and you know, to me, again, we just do because it covers all communities, people, that's all that matters is [00:14:28] doctors, politicians, congressmen, [00:14:31] children, the women. [00:14:33] Woman, that's right, we have, we have [00:14:37] quite a few woman living in New Zealand with with HIV. That's that. And that's really important to remember. [00:14:43] Yeah, [00:14:44] change your life, too. Oh, immensely. immensely. The project in itself has really enriched my life. And HIV has allowed me to meet so many tremendous, tremendous people that perhaps my neighbor will have me But yeah, it sure, as Ellen already mentioned before, make sure you get your priorities right and into perspective [00:15:09] is only little isn't his biggest. [00:15:12] She isn't very [00:15:12] powerful woman. She looks shy and frail. But she gets she gets up and stands in front of people and tell some what's happening out there. And they stand and listen, we let me go into the schools, you can actually hear the kids listening. And we've had teachers come up to us and say, in the five years I've taught at the school, I've never seen or heard the kids listening so much. And that just shows the power these kids are aware and worried and concerned and Nikki gets up there and tells it like it is and she doesn't in such a while she's a mother so she can relate to these kids. So [00:15:46] we got a couple of things. Certainly here. Yes. And there's not too many of the three dear friends that getting out of our home without having a prevention talk on HIV AIDS, because as parents and we have to be aware of this, whether we like it or not, our children are not going to remain relevant until they're married. And and I for one having lost a brother would certainly not like to lose one of my children to HIV. And so, appearance that sort of, you know, you think sometimes as a parent, will you condoning you can do. You can dine children a few speak about, you know, six measures and things like this, that you're perhaps giving them a license to go out there and do whatever they like willy nilly. Now, I don't believe that I just every parent's responsibility. Now. I mean, two years ago, my mom would be worried about my getting pregnant on the not the fear of HIV. Now, I worry about that. Maybe my teenage daughter made a campaign and contact the virus. [00:16:47] While she's the one moment of indiscretion, exactly, exactly. 111 husband away on business. That's all one is slip up just one. [00:16:56] Exactly. And that that's all it takes. It's all good at tags and high end and everybody's human so that this is where I mean about the discrimination. Long term. It doesn't matter how you contracted that far as the point is, you are a person who wanted to live an extremely into Mangia to be [00:17:19] my guest this afternoon is Nikki Eddie. She's the CO convener of the New Zealand aids project. It's part of an international project, which is going to have its second unveiling in San Francisco and San Francisco and another Washington on San Francisco in Washington over a couple of weeks time and the second week in October, where something like 15 acres of a memorial quilt just from the United States is going to be on public display for a weekend and Nikki's off to this convention. And number here in Auckland, 3093 o double nine, I thought we might have heard from a few people up and down the country who have been in some way touched by someone with a joint some way touched by the virus. It doesn't matter. It might be someone you know, it might be a neighbor, it might be a relative, it might be your husband, it might be whatever it might be somebody with HIV, just some just diagnosed it might be somebody who's died of the virus that you'd like to join us this afternoon to talk to Nikki Eddie baller elements diagnosed HIV positive only three years ago. And the program is made possible by Mitsubishi Motors, New Zealand limited I [00:18:20] like for today. Let's just say it's 20. It's 90 minutes away from for Sarah joining us on the program now from Thompson north. Hello, Sarah. Hi, good afternoon. [00:18:29] Good afternoon. Can I please go? Hi, Sarah. Hi, I admire you very much for what you're doing about this quote campaign. Thank you. And that is for awareness of it. That's correct. Yes. [00:18:46] Indeed, you [00:18:47] know, how do you feel about the education that's going for lack of I believe, for the general public, at large and and schools about HIV and AIDS? [00:18:58] for the few schools, we've been into Sierra with the guidance counselors there, again, they are doing the best with the resources that they have that Yeah, for sure. That is a tremendous, heaps more to be done. And we hope to, through the cool project that we can do this in a really non threatening way. It helps to open up the doors and helps people to talk about what can be a very, very difficult subject, because it's like, if we don't talk about it, perhaps it will go away. [00:19:27] Right, and we're [00:19:28] not going to know of course, it's not Yeah. [00:19:31] I any time in life on the program. You're saying that 100 people in New Zealand, nine, [00:19:41] HIV positive, [00:19:43] HIV positive? How many people do you believe has died in the last [00:19:49] two, three years? [00:19:51] How many? We have heard or I cannot say in the last two to three years, I just know that overall 300% point in time and approximately 300 because unfortunately, sometimes it takes up to six months for the final statistics to come through. But we won't forget about also perhaps the New Zealanders dying overseas, that overseas that we don't have any account for and there are many many, many hundreds of our own countrymen and women dying overseas that we don't have an account for so that's certainly good to be forgot about as well. [00:20:28] Right. [00:20:30] I just I felt I had freedom that died at the end of last year right? And a really is Knox [00:20:41] awareness about [00:20:45] awareness and what why are we speaking Syria, the fact that [00:20:49] everyone can get I use this court rule at ease and no longer? And it sounds silly a homosexual to say, Oh, no, it's not but it's where it's being [00:21:01] quite often uses its Pepsi non as a guideline and, and it is an unfortunate fact and very sadly, that it has will open their wisdom world sadly affected our gay communities of the world. You know, how does fastest first but that the heterosexual community now for argument's sake, the latest stats are here in the US are the young heterosexual males between 18 and 25. A good makeup a very, very high percentage of those being tested HIV positive. So you're quite right. Suicide is not just a gay plague. It's everybody's concerned. What do I do to stop? The main the bigotry, the people? Sorry, [00:21:44] all that those have children and what each case in League of walks? [00:21:49] Well, at this point in time, because as you're aware, there, there is not a cure for HIV AIDS. So we have to work hard and fast on prevention. Because prevention at this time point in time is, is all we have. And we as parents, we as teachers, we the lights of yourself that have lost the freedom to wise and you know what, what it's like to see a loved one die of AIDS, it's pretty horrific as [00:22:13] well. It is close to the same thing hold at the time, they're not dying, as I like to say, [00:22:21] Okay, well, that that's true. That's a true thought, Oh, I should say that myself actually. [00:22:27] And it's what we can do for prevention as those those particularly for those of us that have lost loved ones to I just, it's just to get out there and spread the word and say, yeah, these are the ways you can contact the virus, or contract the virus. And these are the ways you prevent yourself. Stay safe. [00:22:47] Stay safe. That's right. So Sarah, thank you very much for taking the trouble to bring all the way from Publix, thank you for your for your contribution to the program this afternoon. take a quick break for my guests, Nicky Eddie, who's the world country isn't that easy? Don't quote by Jason Ellis, who's living with HIV. And you're welcome to call if you'd like to join the program on 309. Three, double 924. [00:23:26] God will be if it's officially Let's be sure it's over. It's before Thank you. Mitsubishi Motors, New Zealand limited for sponsoring a special program with the New Zealand quilt project and my two guests, Nicky Eddie, who's the cleaners New Zealand and Ellen bola who's living with HIV. A quick call from Michael white down there and feeling Hello, Michael. [00:23:42] Yes. Hi. I speak to Nikki please. [00:23:44] Yeah. Hi, Michael. [00:23:46] Yeah, hi, I've got a very exciting piece of information here that not many people are aware of. [00:23:54] Now, and Australia at the moment, there is research being done for a cure for AIDS. [00:24:03] That's the only hopeful thing that I've ever heard of. [00:24:08] It's not a cure by drugs, or any any sort of thing like they're a sexy system, like a herbal thing as [00:24:15] though it's an electronic cure. [00:24:19] And it's based on a principle called nuclear magnetic resonance. And the closest thing you could liken it to would be the effect where you can shatter a crystal glass with an exact resonant frequency of a certain patch in certain strength fry. [00:24:39] And how's it [00:24:40] with this attached your body or something? No, [00:24:43] no, it's well, the sofa [00:24:46] I have read about this. They filled as a bloodless bit like a it's a bit like a dialysis machine. And they still do the blood through [00:24:54] it sort of Yeah. [00:24:55] How did you come to hear about this? [00:24:57] Well, I read of them an electronic copy of the magazine. [00:25:02] But hey, yeah, stranger things have happened both at some of these things, these miracle cures coming up all the time, and so many people given false hope by these years that [00:25:15] it whereas general medicine has a lot to learn from herbalists and everything. [00:25:22] It's little, can't raise people's hopes. [00:25:24] Right? I wouldn't want to raise [00:25:26] people's hopes are you living with HIV? might know I'm not. [00:25:30] Basically what the guy has come up with sofa is a microwave oven. [00:25:36] Now what he's done, okay, look, let's not get too far into it. Michael, thank you very much for taking the trouble to ring and do wait on the line for so long, where I don't want to get too far distracted from from the purpose of the program this afternoon. But thank you for sharing nonetheless. And who knows? [00:25:50] Stranger things have happened. You know, there are some wonderful people out there we're working very hard to find a cure myself as somebody who's living with the virus. I honestly don't see it happening and in my lifetime, well, [00:26:05] you never know that I [00:26:06] always holding out hope that happens to [00:26:09] be optimistic. [00:26:11] Thanks for calling, Michael. All the way from fielding. I'd like to mention too well. It just occurs to me that there's a there's a wonderful little booklets and New Zealand project age Memorial booklet. Has we looked at now, is this available for people? [00:26:23] It certainly is if they'd like to send to us that post office box 7024 Auckland [00:26:31] district [00:26:31] policy straight yes what as well as the street Auckland, thank you, Ellen a donation and donations are really accepted. And what happens with our donations as folks that once we've we hope to be able to put back into much needed HIV support services is where the funds from the court project go apart from paying for some merchandising and that to help keep ourselves afloat. But ultimately that's where [00:26:58] we aim to put it back in all the money raised Of course, by the quote project is going to AIDS research and the like and it's only by the kind offices of people like Mr. Vision New Zealand very limited this afternoon that were able to do this program. I mentioned before North Island. I mentioned before that he picked up the project book the names that project but let's get back to the last one you're experiencing. [00:27:20] Oh, yes was amazing. This was the first inviting we had on [00:27:25] the horizon Oakland and what it did to open up doors for our married people that have lost people to AIDS and family people that are living with HIV AIDS was just awesome on Ellen was actually with me in up in North London, and it was just really overwhelming, wasn't it the way they know people open their hearts and, and these quotes live I mean, that's all there is to it. These quotes live. So they did the wonderful thing. They they're very, there was only about half a dozen stops they had on the tour and I had them in north and the whole month they ended up just their identity was shot to heck and because each mirages basically kicked out into when you pass stop, we want to see and they reckon they must have raised over 10,000 people in North underlying with the court project and covered about I think they went into about 12 different high schools if my memory serves me correctly so all the time creating it winners and and just opening up a lot of doors for a lot of people to talk as I said before that what can be a very difficult subject [00:28:29] and actually been on the Mariah was was very special. Just the feeling of the Mariah and the quotes have been very spiritual themselves. And being on a Mariah, which is very spiritual that the two coming together was was incredible. It's hard to explain it really, really was she [00:28:47] was the feeling you won't forget [00:28:50] that we were reluctant to let the quotes in actual fact out of the out of the position. Oh, yes, that [00:28:53] was that was a trust thing again, that once I came into the the core project that we were teams and care for them as they would and they had these reassurances that yes, sure they would be traded with all the love and respect that is to them. They were quite happy than to allow them to come on into the court project because understand these quotes, always people I know for Robin, it makes me extremely proud, proud that although he's gone, his his called as an educator. It's like a silent voice that speaks and it's wonderful. My guest [00:29:27] this afternoon, Nikki Eddie, who's the composer project Katrina said Is it under Delon Butler who's living with HIV radio [00:29:38] sorry we're at dry faster test drive at New Mirage so we'll probably be [00:29:46] please find them at the [00:29:48] party cheering [00:29:52] and this afternoon's program as a doggy business compliments of Mitsubishi Motors these a limited thank you Mitsubishi Motors for making it possible with Nicky Eddie his the convenient for the New Zealand cool project and Ellen bowler is living with HIV. I thought we might have had a few more calls over the course of the hour but has been fascinating to a dog and this book is absolutely amazing the stories from the names project is this available that he [00:30:13] is from in from San Fran we actually hope to do something very similar from our own New Zealand crew project as we get a few more stories together and of course be aware of it. It's all a lot to do with confidentiality to to to publish those stories that we are at [00:30:28] I'm surprised I haven't seen more of this on TV I really am surprised that I haven't seen some of the quotes for example I came over to the Lido last night to on your whether the names project film was running which was nominated for Academy Award and and the you had some of the New Zealand some of the clips some of the box from New Zealand I mean bits of rope from around the farm further Bowers jewelry, you name it all attached to these amazing works of art a painting a portrait absolutely magnificent. Yeah, there's one thing I have asked which I thought I'd leave to the very end because it was something that touched me so deeply when you talk to me about it on the phone the first time we spoke several weeks ago and that is the size of each each blog each panel [00:31:11] each panel is six foot by three foot that is representative of a grave plot and very significant [00:31:19] listen I hope your trip goes extraordinarily well to Washington DC I have it goes wonderfully well unlike I'm sure it will thank you What is it? What is it good become aware of the quote project and the and the work that you're doing the better. Thank you for your time to Ellen. And good luck to you and thank you to look to others. Thank you much. [00:31:38] Thanks very much.

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